The Cutting of Parts

I’m really going to try and update once a week, maybe a bit less, maybe a bit more, it really depends on what I have going on. I’ll try to keep my updates on Friday.

Yesterday was doomsday for Dillon (A.K.A. circumcision day). Yes, it’s a little late in the game, but he couldn’t be on his back for a while and therefore we had to wait.

I think I was probably more upset about it than he was, although, if he actually knew what was going to happen he probably would have learned to walk/run yesterday.

They're gonna cut what off of my what?!

“They’re gonna cut what off of my what?!”

I made the mistake of reading about the complications of circumcision the night before Dillon had his appointment. Don’t do that (I should really stop researching things on the internet). All you need to know is that it’s a very common procedure and that they might be fussy for a day, but they feel better soon.

I can't believe that just happened. I don't know what to do with my life anymore.

“I can’t believe that just happened. I don’t know what to do with my life anymore.”

The next day.

The next day.

They used the PlastiBell for Dillon’s circumcision. It’s a bad idea to read about that too. All you need to know is that it’s very easy to care for and scarring is negligible.

Dillon has a comprehensive appointment May 9th. As strange as it sounds, I am most concerned/curious about his bladder and bowels. Making sure the kidneys are healthy is one of the most important aspects when it comes to a person with spina bifida. If a child has the issue of not being able to empty their bladder completely, urine could reflux into the kidneys and cause problems.

Fun fact: 95% of children with spina bifida have problems with their bladder or bowels.

I read somewhere that the more they move their feet, the more likely they are to not have urinary nor bowel incontinence. Dillon moves his feet quite a bit so we will see how reliable that information is on Thursday.

Even if he does have problems, this doesn’t mean he will have to wear diapers all of his life. He will learn social continence by catheterizing himself every few hours. No one would notice it, because it would be as if he was just making a trip to the bathroom.

However, perhaps this will not be the case. Dillon could be the 5%. He’s a pretty unique child, so I’m betting on it.

Anyway, that’s it for now, I’ll update the day after his appointment and let you all know how everything went!

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4 thoughts on “The Cutting of Parts

  1. “If a child has the issue of not being able to empty their bladder completely, urine could reflux into the kidneys and cause problems.” …Just want you to know that scar tissue on the glans developed from circumcision can and very often does cause Meatal Stenosis, a narrowing of the urinary opening, which actually does impede a child’s ability to empty their bladder all the way. I know because that’s what happened to my son. My does does not have Spina Bifida and it still caused him terrible problems. His urinary opening was smaller than it should’ve been (smaller than it would’ve been had he not been circumcised). It didn’t look extremely tiny from the outside, it was smaller on the inside. My son had no “free flow” of urine. He had to push his urine out which was always uncomfortable for him. He couldn’t empty his bladder all the way so he would have the need to urinate about every 20 minutes. As a young boy who would naturally be more interested in playing rather than going to the bathroom every 20 minutes, he began to start holding it, which let to many bladder accidents, and caused him to be at constant risk of bladder infections as well as kidney infections due to reflux. He also peed in the bed every single night, and not just once but twice. My son had to have corrective surgery just last year to repair the Meatal Stenosis. So far, he seems to be doing much better, hopefully he will continue to do better and never have those problems again. His urologist stated that Meatal Stenosis is one of the most common complications of circumcision. So if you did research on circumcision prior to your son’s birth, I’m sure you would’ve came across this information. And if urine reflux and bladder problems were a main concern for you, I really don’t understand why you took that risk for your son to develop such a big problem in his condition. Also, what I’ve learned from my research, after the fact, is that the only thing that puts Uncircumcised boys at risk of infections is when the doctors or parents forcibly retract the foreskin before it is naturally ready. They do this to “clean it”. However, up to a certain age (different for every boy) the foreskin is fused to the head of the penis as a natural protection barrier to keep dirt and germs out. That is why…if the foreskin is left alone and not forcibly retracted, those babies don’t develop infections. And if the foreskin is forcibly retracted, then the baby can and usually does develop infections. That’s when doctors say “well he needs to be circumcised”. Just explaining what I’ve learned and how that all plays out. But I’m posting this comment so that you can have the info about the Meatal Stenosis and keep an eye out for any problems with that. My son suffered with those problems until he was 5 yrs. old and then had the corrective surgery. You might want to look into it.

    • Yeah I read about that the night before his circumcision, plus all of the other possible complications. I’m sorry your son had to go through that. But anyway his urologist (not the urologist that did the circumcision, but the one who sees him every few months) saw him a few days after his circumcision (at his clinic visit) and said everything looked great. Many kids with spina bifida have bladder problems and therefore have to be catheterized several times every day for the rest of their life. His urologist recommended circumcision because it does lower risk for UTIs and have you ever catheterized an uncircumcised baby? The urologist who did his circumcision did an excellent job, I’m really happy with my decision, it healed perfectly. Dillon was happy and smiling the next morning. I asked my fiancé if he remembered getting circumcised and he said no, so..

  2. Different doctors have different opinions. My son’s Ped always said my son’s urinary opening looked fine too, and when I was getting concerned on my own he did not recommend the corrective surgery. He wanted to wait and see if he developed any bladder or kidney problems. My urologist also said in the beginning that it looked fine. But later, 2 other urologists said that it was not fine and that he needed the surgery. After the surgery, my son improved greatly. Some doctors may not want to bring attention to harm caused by circumcision, unless they feel its absolutely necessary.

    As for catheterizing an intact infant (uncircumcised)…
    Nurse K. at Johns Hopkins Hospital in Baltimore, Maryland (top ranked urology hospital in the nation), writes, “I know for certain as a result of working with many intact boys that the catheter can be inserted without retracting the foreskin. There is no reason whatsoever that the foreskin would need to be retracted for a simple catheter insertion procedure. The catheter used on an infant will be tiny and should be easily slipped into the small opening at the tip of the foreskin, right into the meatus. Parents: be firm and tell others that retracting the foreskin is not acceptable! Not even ‘just a little.’ If you must, you be the one to hold your son’s penis and slide the catheter into place. They can take it from there. Or, specifically ask for someone who has catheterized an intact baby without retraction.” That’s from an expert. And in my own opinion it can’t be that much more difficult than catheterizing an UNcircumcised female baby.

    I really don’t understand what your husband’s recollection of his own circumcision, or lack of, has to do with your son’s bladder issues or my son’s bladder issues…or THEIR circumcisions for that matter. But just to address what you said, babies who fall out of a tree and break their arm won’t remember that either, nor will a baby remember being attacked by a dog…when they are grown. But that doesn’t mean that they weren’t harmed or traumatized. Just saying…

    I just happened to read your blog when I was searching for another one. And I read the part where you said “As strange as it sounds, I am most concerned/curious about his bladder and bowels. Making sure the kidneys are healthy is one of the most important aspects when it comes to a person with spina bifida. If a child has the issue of not being able to empty their bladder completely, urine could reflux into the kidneys and cause problems.” And since I have personal knowledge and experience with this due to the issues my own son had, I wanted to share that with you, and explain that a circumcision could actually CAUSE the very thing you were trying to PREVENT. If that didn’t happen with your son, then wonderful. But it’s still something you might want to watch out for regardless of a doctor telling you that “it looks fine”, especially since it’s even more important in your son’s condition.

    I would also like you to know though that you are being very irresponsible in telling other parents, “All you need to know is that it’s a very common procedure and that they might be fussy for a day, but they feel better soon.” AND “They used the PlastiBell for Dillon’s circumcision. It’s a bad idea to read about that too. All you need to know is that it’s very easy to care for and scarring is negligible.” That is NOT all they need to know. There are many different instruments and techniques that are used for circumcisions that they don’t even bother to tell parents about. And there are many real risks for a child who undergoes circumcision, including death. Did you know that over 100 babies die each year from circumcision? It only takes a loss of 2.3 oz. of blood loss, which a parent would never even see soak through a diaper. A loss of only 1 oz. of their blood can send them into shock from hemorrhage. And many of them do not “feel better soon”. My son also developed adhesions (which I wasn’t going to go into), which MANY boys develop, because whatever is left of the foreskin tries to reattach to the head of the penis as nature intended it. And when this happens, you have no choice at that point but to pull back on the foreskin on a regular basis for quite a long period of time to keep it from reattaching. This is usually extremely painful for the baby. I know mine screamed every time I had to do it, which was traumatizing for me also.

    I am very glad for you that your son’s circumcision isn’t causing him additional pain or problems. But please do not mislead other parents who’s sons may not end up as lucky. Every parent has a right to know ALL important information about the practice of circumcision. And this is one issue where you WILL find more ACCURATE information on the internet than you will ever get from the healthcare community. When I was in nursing school, our text books didn’t even show a penis in its natural intact form. Doctors are being taught from those same books. This has been going on for so long that most doctors are very UNinformed themselves when it comes to circumcisions and the care of an intact natural baby boy’s penis.

    • My son (due to his spina bifida) has multiple tests done on him (not just LOOKING at his penis) every few months to check his bladder and kidneys, so when they say everything is fine I assume they know what they’re talking about. You really think I’d be so stupid as to just let a doctor LOOK at him and say oh yeah he’s fine.

      I was not speaking of retracting the foreskin during catheterization, no, the NICU nurse did that and you could tell Dillon was in pain. I was talking about it not being easy and not being as clean (you definitely do more cleaning catheterizing an uncircumcised baby rather than a circumcised baby). My son has a very high chance of having to be catheterized, and even though most kids know how to do it themselves by the time they’re 6, I guarantee you a little boy would, like you said, much rather spend time playing, than taking extra time to do more cleaning on their uncircumcised penis before they catheterize themselves.

      Also, not that it matters, because I had already made the decision to circumcise, I know men who got circumcised in their teens because their parents chose not to circumcise them. I also know guys who aren’t circumcised and resent their parents for not getting them circumcised when they were born.

      And this is not a source to get factual information. It’s a personal blog. What I said was not irresponsible, it’s my opinion. 😏

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