I’m really going to try and update once a week, maybe a bit less, maybe a bit more, it really depends on what I have going on. I’ll try to keep my updates on Friday.
Yesterday was doomsday for Dillon (A.K.A. circumcision day). Yes, it’s a little late in the game, but he couldn’t be on his back for a while and therefore we had to wait.
I think I was probably more upset about it than he was, although, if he actually knew what was going to happen he probably would have learned to walk/run yesterday.
I made the mistake of reading about the complications of circumcision the night before Dillon had his appointment. Don’t do that (I should really stop researching things on the internet). All you need to know is that it’s a very common procedure and that they might be fussy for a day, but they feel better soon.
They used the PlastiBell for Dillon’s circumcision. It’s a bad idea to read about that too. All you need to know is that it’s very easy to care for and scarring is negligible.
Dillon has a comprehensive appointment May 9th. As strange as it sounds, I am most concerned/curious about his bladder and bowels. Making sure the kidneys are healthy is one of the most important aspects when it comes to a person with spina bifida. If a child has the issue of not being able to empty their bladder completely, urine could reflux into the kidneys and cause problems.
Fun fact: 95% of children with spina bifida have problems with their bladder or bowels.
I read somewhere that the more they move their feet, the more likely they are to not have urinary nor bowel incontinence. Dillon moves his feet quite a bit so we will see how reliable that information is on Thursday.
Even if he does have problems, this doesn’t mean he will have to wear diapers all of his life. He will learn social continence by catheterizing himself every few hours. No one would notice it, because it would be as if he was just making a trip to the bathroom.
However, perhaps this will not be the case. Dillon could be the 5%. He’s a pretty unique child, so I’m betting on it.
Anyway, that’s it for now, I’ll update the day after his appointment and let you all know how everything went!